Links and Resources

There are many useful websites when dealing with Addison's Disease. One of the most helpful as a newly diagnosed Addisonian is the U.K. Addison's Disease Self Help Group Owner's Manual.
If you have a useful link to suggest for this site, please contact us.

The Canadian Addison Society Online Support Groups

• The Canadian Addison Society Vancouver Island Group
  Local Support Group information and resources for those living in the Island area of BC

Endocrinology

• College of Physicians and Surgeons - NFLD
  Find an endocrinoligist in Newfoundland. Once on the site, click "Physician Search" button, then under Area of Specialization, highlight Endocrinology and Metabolism" in the drop down box. Then click the search button.
• College of Physicians and Surgeons - BC
  Find an endocrinologist in BC. Once on the site, highlight "Specialist" under "Do you want to find" and choose "Endocrinology and Metabolism" in the drop down box. Then click on Search button at the bottom of the page.
• College of Physicians and Surgeons - Ontario
  Find an endocrinologist in Ontario. Once you are on the site, choose "Specialist" in the Physician section and highlight "Endocrinology and Metabolism" in the Specialization drop down box. Click on the "Submit" button at the bottom of the page.
• Endocrine Web - Endocrine Disorders and Endocrine Surgery
  A site written by doctors for patients. Check for the link on Addison's disease and, there are other hormone related problems discussed, as well as pictures of the various glands and their locations.
• Endocrine Society
• Society for Endocrinology
  Full-text online journals.

Forums / BBS / Community Support

• Addison's Disease Self Help Group (ADSHG)
  The Addison's Disease Self Help Group is the UK support group for men, women and children suffering from Addison's Disease and their families. This site also provides a direct link to the manual, Living with Addison's Disease - An owner's manual for individuals with the disease.
• New Zealand Addison's Network (NZAN)
  Formed in 1996 as a support network as well as a means of bring awareness to Addison's.
• Pituitary Network Association
  Offers to support, encourage, enlighten, and educate.
• Addison's, Schmidt's syndrome, Cushing's Disease and other Related Autoimmune Diseases Information
  This web site offers an overview of Addison's disease, Schmidt's syndrome, Cushings disease and other autoimmune diseases. Just type the autoimmune disorder into the search line at the top of the page.
• Yes, I have Addison's Disease. No, it's not contagious
  Facebook group started by Alitia Northey to give young people a forum to share/ask/talk about Addison's disease. The group has members from all over the world and shares their unique experiences with Addisons. In order to access group, you will have to sign on to Facebook first, in order to access this group's information. Once you have a Facebook account, you should have direct contact with the group's web pages.

Global Associations and Organizations

• ALD la vie
  Underlying Adrenoleukodystrophy or Adrenomyeloneuropathy (ALD or AMN) is an important cause of adrenal failure in males. The disease is X-linked, meaning that females are carriers for the disease but it is males who develop the major forms of the disease. In some families there may be a history of adrenal failure, nervous system disorders or early death (including sudden unexplained death) in males linked through the female side of the family. Please note that this is a very rare condition found mostly in males.
• L'association "SURRENALES
• Canadian Organization of Rare Disorders (CORD)
• Australian Addison’s Disease Association Inc
• New Zealands Addison's Network (NZAN)
  Formed in 1996 as a support network as well as a means of bring awareness to Addison's.
• UK Addison Self Help Group
• The Mayo Clinic
• American Autoimmune Related Diseases Association (AARDA)
  A non-profit association bringing a national focus to autoimmunity, the major cause of chronic diseases.
• Centers for Disease Control and Prevention
• Public Health Agency of Canada - Population Health Approach
  Details on specific illnesses and diseases, discussion forums and links to health organizations.
• National Adrenal Disease Foundation (NADF)
• The Institute for Safe Medication Practices Canada is an independent national not-for-profit organization committed to the advancement of medication safety in all healthcare settings. ISMP Canada works collaboratively with the healthcare community, regulatory agencies and policy makers, provincial, national and international patient safety organizations, the pharmaceutical industry and the public to promote safe medication practices. ISMP Canada's mandate includes analyzing medication incidents, making recommendations for the prevention of harmful medication incidents, and facilitating quality improvement initiatives. Information about ISMP Canada's work with Canadians to prevent medication incidents is available at: www.ismp-canada.org; and also at www.SafeMedicationUse.ca, a website designed for consumers.
  ISMP and The Canadian Addison Society have a collaborative relationship seeking improved safe medication practices for our members, adherents and followers.

Medicinal / Alternative Medicines

• American Botanical Council
  Herbal medicines.
• Medscape DrugInfo
  Database brings you the latest information from the National Drug Data File from FirstDataBank, and the American Hospital Formulary Service Drug Information reference from the American Society of Health-System Pharmacists (ASHP)
• RxList - The Internet Drug Index
  An excellent reference site to check out the properties and side effects of medications.

Informational / Educational / Education Institutions

• Countway Library of Medicine (Harvard School)
• United States National Library of Medicine
  The 'world's' largest medical library and creator of medline.
• UPMC Health System
  Affiliated with the University of Pittsburgh schools of the health sciences. Type addison's disease in the search box at the top of the page to access information selections on the disease.
• The Story of Dusty Hardman
• Patient Information Publications
  Publications from the NIH Clincial Center National Institutes of Health
• www.rarediseasereview.org
  Rare Disease Review is a medical & health policy journal focused on providing detailed discourse on rare diseases and their societal effects that anyone can understand.

medSask drug conservation strategy documents

• Hydrocortisone tablets
• Solu-Cortef
• Florinef

Travel

• The International Society of Travel Medicine and the Journal of Travel Medicine
• Travel Health Information Service

Publications

• New England Journal of Medicine
  For those of you with an understanding of medical terminology. Articles are available but occasionally with a cost.
• BioScientifica
  Services to biomedical science which includes the European Journal of Endocrinology online.
• United States National Library of Medicine
  The 'world's' largest medical library and creator of medline.

MedicAlert

• MedicAlert
  Do you subscribe to MedicAlert? If so, it is imperative that you keep your medical data up-to-date. Log onto the web site to update your information.

Canadian Addison Society Radio Interview March 2012

• The Canadian Addison Society Radio Interview March 2012
  Listen to the Radio Interview with Steven McKenna (Local Support Group Leader - Eastern Ontario) and Patricia Hehner (Newsletter Editor)

 

If you experience a problem with one of these links, or want to have your site added to this list, please contact us.